ISFTD is delighted to be working with the University of Pennsylvania Frontotemporal Degeneration Center (Penn FTD Center) to host the Caregivers Day, a one-day conference for family members and professional caregivers with presentations from leading experts to learn more about advances in research and approaches to care.
Friday, October 9, 2026
7:30 AM - 8:30 AM
Salon I-L Foyer
Registration and Breakfast
8:30 AM - 10:00 AM
Salon I-L
Welcome & Opening Plenary
8:30 AM - 10:00 AM
Keynote Address
Speaker:
Katie Brandt, MM
Moderator:
Emma Heming Willis
8:30 AM - 10:00 AM
Welcome and Introduction
Speaker:
Lauren Massimo, PhD, CRNP, FAAN
10:00 AM - 10:30 AM
Franklin Hall B
Coffee Break/Networking/Poster Viewing
10:30 AM - 11:20 AM
Salon I
Breakout Sessions 1
10:30 AM - 11:20 AM
Salon I
Managing Behaviors Exhibited in FTD
Speaker:
Edward D. Huey, MD
10:30 AM - 11:20 AM
Salon K
Navigating the Conversation of FTD Genetics withLoved Ones
10:30 AM - 11:20 AM
Your Seat at the Table: FTD Research and the Care Partner's Role
Speakers:
Shana Dodge, PhD & Dahlia Kamel, MS
11:30 AM - 12:20 PM
Breakout Session 2
11:30 AM - 12:20 PM
Lived Experience as an FTD Care Partner - The Road to an FTD Diagnosis & Beyond
11:30 AM - 12:20 PM
How to Support Kids and Teens in a Family with FTD
11:30 AM - 12:20 PM
Scientific Data Blitz
12:30 PM - 1:30 PM
Salon I-L Foyer
Lunch
1:30 PM - 2:20 PM
Breakout Session 3
1:30 PM - 2:20 PM
Care Decisions: Managing Facility and Home-Based Support
Speaker:
Alison Lynn, MSW, LCSW
1:30 PM - 2:20 PM
Lived Experience as an FTD Care Partner - The Road to an FTD Diagnosis & Beyond
1:30 PM - 2:20 PM
Frontotemporal Dementia: Advances in Classification, Biomarkers, Genetics & Therapeutics
2:30 PM - 3:20 PM
Breakout Session 4
2:30 PM - 3:20 PM
Volunteer & Advocacy – How One Voice Can Make a Difference
Speaker:
Meghan Buzby, MBA
2:30 PM - 3:20 PM
Managing Motor Symptoms in FTD
Speaker:
Allison Snyder, MD
2:30 PM - 3:20 PM
Managing Language Symptoms in FTD
Speaker:
Emily Rogalski, PhD
3:30 PM - 4:00 PM
Franklin Hall B
Coffee Break/Networking/Poster Viewing
4:00 PM - 4:15 PM
Salon G
Introduction to The Holly Hayes Lecture on FTD
Speaker:
Marsel Mesulam
4:15 PM - 4:45 PM
Salon G
Holly Hayes Annual Lecture on FTD
4:45 PM - 5:30 PM
Salon G
Panel: Recent Advances in Biomarkers and Emerging Therapies Shaping the Research Landscape
Panelists:
Adam Boxer, Alexander Murley & Yolande Pijnenburg
Moderator:
Nicole Bjorklund