ISFTD is delighted to be working with the University of Pennsylvania Frontotemporal Degeneration Center (Penn FTD Center) to host the Caregivers Day, a one-day conference for family members and professional caregivers with presentations from leading experts to learn more about advances in research and approaches to care.
Registration Fee: $50
Tentative. Subject to change.
7:30 AM – 8:30 AM
Registration and Breakfast
8:30 AM – 10:00 AM
Welcome & Opening Plenary
10:00 AM – 10:30 AM
Coffee Break
10:30 AM – 11:20 AM
Breakout Session A1: FTD Behaviors Exhibited and Management of Symptoms
Breakout Session A2: Navigating the Conversation of FTD Genetics with Loved Ones
Breakout A3: Research Opportunities
11:30 AM – 12:20 PM
Breakout Session B1: Lived Experience as an FTD Care Partner – The Road to an FTD Diagnosis & Beyond
Breakout Session B2: How to Support Kids and Teens in a Family with FTD
Breakout B3: Management of Motor Symptoms
12:30 PM – 1:30 PM
Lunch
1:30 PM – 2:20 PM
Breakout Session C1: Lived Experience as an FTD Care Partner – The Road to an FTD Diagnosis & Beyond
Breakout Session C2: FTD & the Arts
Breakout C3: Care Decisions: Managing Facility and Home-Based Support
2:30 PM – 3:20 PM
Breakout Session D1: Management of Language Symptoms
Breakout Session D2: Scientific Data Blitz
Breakout D3: Care Decisions: Volunteer & Advocacy – How One Voice Can Make a Difference
3:30 PM – 4:00 PM
Coffee Break
4:00 PM – 4:15 PM
Award Ceremony
4:15 PM – 4:45 PM
Holly Hayes Annual Lecture on FTD. For more details, click here.
4:45 PM – 5:30 PM
Panel: Recent Advances in Biomarkers and Emerging Therapies Shaping the Research Landscape